Chairperson
Executive Director
Contact Information
NYS Developmental Disabilities Planning Council99 Washington Avenue, 12th Floor, Suite 1230
Albany, New York 12210
Phone: 800.395.3372
FAX: 518.402.3505
Email: Email Us
Upcoming DDPC Meetings
Childrens' Issues Committee MeetingNo meetings scheduled for this period.
Systems Committee Meeting:
No meetings scheduled for this period.
Adult Issues Committee Meeting:
Thursday, December 1, 2011
Time: 9AM - 3PM
Location: NYS DDPC
99 Washington Ave, Suite #1230 (12th Floor)
Albany, NY 12210
For more information, please contact the NYS DDPC at 1.800.395.3372
*** Notice ***
Open Government and the New York State Developmental
Disabilities Planning Council (DDPC).
All DDPC meetings are held in
Albany, NY unless otherwise noted. Under law, the New York State
Developmental Disabilities Planning Council (DDPC) meetings and DDPC
Standing Committee meetings are open meetings. If the public wants
to attend, they can attend as observers. Participants may be asked
to leave during breaks in the deliberations and when the meeting
goes into executive session.
For more information, please contact the DDPC directly at
1.800.395.3372.
People First Language
The DDPC strictly adheres to and encourages the use of people first language. However you may note that in some articles/stories appearing in the E-Bulletin the language used is not always entirely people first. Articles submitted to the DDPC are taken verbatim from the source and are therefore not edited by the DDPC for correct people first language due to copyright restrictions.
NYACTS is a website designed to provide current information on New York State services and supports for individuals with autism. Autism is on the rise in New York State and around the country. It is estimated that more than 60,000 New York State residents have a diagnosis of autism or autism spectrum disorders (ASDs) and that the incidence of autism could reach 4 million Americans in the next decade. New York State government needs to be united in its efforts to respond to these dramatic statistics. The formation of the Interagency Task Force on Autism has helped to ensure that state agencies are working together to assist individuals and families struggling with ASD.
Grantee Success Story: UCP/ NYC HealthLink for Nurses Training
Nurses are frequently the first healthcare provider to see,
provide, and coordinate care for people with developmental
disabilities including individuals who have medically fragile
conditions.
Yet, research suggests that a major cause for the unmet healthcare
needs of children and adults with developmental disabilities is a
lack of healthcare provider training and experience with their
health conditions. Nursing students and experienced skilled
nurses report receiving limited professional education about the
health care of people with developmental disabilities.
To address this knowledge gap, with the support of New York State
Developmental Disabilities Planning Council (NYS DDPC) grant funds,
United Cerebral Palsy of New York City (UCP/NYC) developed
“HealthLink for Nurses”. HealthLink for Nurses is an
innovative multi-dimensional curriculum and training. The
training is designed to assist both nursing students and
experienced, skilled, nurses to respond more sensitively and
knowledgeably to individuals with developmental disabilities who
also have medically fragile conditions. UCP/NYC partners with the
two schools of nursing to implement the HealthLink for Nurses
training. Partners include the Phillips Beth Israel School of
Nursing (PBISN) and Kingsborough Community College Nursing Program.
Unique features of the HealthLink for Nurses training include
sensitivity exercises and an opportunity to meet a person with a
disability to learn from their personal experiences and challenges
of accessing and managing their healthcare. The HealthLink for
Nurses curriculum focuses on the principles of respect, person-first
philosophy over diagnosis, patient and family-centered care, and
offers a variety of communication and interaction strategies.
The HealthLink for Nurses curriculum is structured to be implemented
in three-hour modules and incorporates lectures, videos, case
vignettes, interviews, and group exercises. These educational
elements help students to reflect upon their personal perceptions
and assumptions about disabilities and how attitudes and personal
biases may impact work.
Evaluations from the training note the following positive changes
for students related to knowledge, sensitivity, and implications for
care:
“As a result of HealthLink for Nurses I have a better perspective.
I gained better appreciation and understanding about the needs of
people with disabilities.”
“HealthLink sensitized me about the need to approach people with
disabilities with a focus on the individual and not diagnosis.
I gained a better understanding about the implications of living
with a disability.”
UCP/NYC has provided training to more than 600 nursing students and
skilled nurses in New York City over the last three years with
HealthLink.
For more information about the HealthLink for Nurses training
package, please contact:
United Cerebral Palsy of New York City:
info@ucpnyc.org
or
Laura Hickman
lhickman@ucpnyc.org
(212) 683-6700 x213